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Our Publications

PACT Publications for Parents

Parents facing the challenges of a serious illness might find a number of PACT’s publications helpful. In addition to PACT’s publications, you may also want to visit other resources on our site, a section that provides a sampling of other helpful sources of information for both people who are ill and professionals who care for them.

 

Raising an Emotionally Healthy Child When a Parent is Sick

Paula Rauch & Anna Muriel. New York, NY: McGraw-Hill; 2006.

 

This practical guide helps parents understand their child’s stage of development, temperament, emotions and possible reactions at difficult times. A supportive text for parents as they encourage and foster their child’s resiliency, emotional health, and well-being.
 

Toolkit to Help Educators Support Children of Parents with Serious Illness

Kristin Russell, Peter Adams, Cynthia Moore, Mary Susan Convery, Sarah Shea, Paula Rauch. Marjorie E. Korff Parenting At a Challenging Time Program; 2014.

 

PACT developed this written toolkit for educators—classroom teachers, principals, school counselors, school nurses and others—who support students who have a parent with cancer or another serious illness. This interactive guide discusses the ways in which educators can support their students by bolstering their resilience, monitoring for behavioral and academic challenges, and communicating with parents.
 

Community Crises and Disasters: A Parent’s Guide to Talking with Children of all Ages

Cynthia Moore & Paula Rauch. Marjorie E. Korff Parenting At a Challenging Time Program; 2015. 

 

Designed as a resource that parents could turn to in a time of crisis, or ideally in advance of a crisis, this PACT handbook provides practical information about children’s reactions to crisis at different ages and ideas about how to support a child’s resilience and facilitate open communication. The full guide, as well as individual sections, are available for download.
 

Talking with Children About Metastatic Breast Cancer

Susan Fitzgerald. Living Beyond Breast Cancer: Insight Articles; 2016. 

 

A brief article, featuring PACT's Dr. Cynthia Moore, which discusses the challenges for parents of talking about a difficult diagnosis. 
 

PACT Publications for Professionals

 

CLINICIAN EDUCATION 

Parental Cancer. 2017. Moore C, Rauch P. In: Children and Young People’s Response to Parental Illness. Eds: Morley D, et al. CRC Press. 106-129.

 

Addressing the Needs of Children When a Parent Has Cancer. 2015. Moore C, Rauch P. In: Psycho-Oncology, 3rd Edition. Eds: Holland J, et al. Oxford University Press. 579-584.

Parent Guidance for Medically Ill Parents. 2015. Mankey V, Moore C. In: Psychiatric Care of the Medical Patient, 3rd Edition. Eds: Fogel B, Greenberg D. Oxford University Press. 218-229.

Supporting Parents with Cancer: Screening and Psycho-education. 2015. Moore C, Muriel A, Rauch P. In: Psycho-Oncology: A Quick Reference on the Psychosocial Dimensions of Cancer Symptom Management, 2nd Edition. Eds: Holland J, et al. Oxford University Press. 127-132.

Development and Evaluation of Targeted Psychological Skills Training for Oncology Nurses in Managing Stressful Patient and Family Encounters. 2013. Traeger L, Park E, Sporn N, Repper-DeLisi J, Convery MS, et al. Oncology Nursing Forum. 40(4): E327-E336.

When A Parent Has Cancer: Supporting Healthy Child Development During Challenging Times. 2012. Swick S, Rauch P. In: Pediatric Psycho-Oncology: Psychosocial Aspects and Clinical Interventions, 2nd Edition. Eds: Kreitler S, et al. John Wiley & Sons, Ltd. 246-259.

Parenting with Cancer I: Developmental Perspective, Communication, and Coping. 2012. Russell K, Rauch P.  In: Reproductive Health and Cancer in Adolescents and Young Adults. Eds: Quinn G, Vadaparampil S. Springer. 131-140.

Parenting with Cancer II: Parenting at Different Stages of Illness. 2012. Russell K, Rauch P. In: Reproductive Health and Cancer in Adolescents and Young Adults. Eds: Quinn G, Vadaparampil S. Springer. 141-150.

When a Patient's Parent has Cancer: The Pediatrician's Role. 2010. Moore C, Mankey V. Contemporary Pediatrics. 27(2): 48-64.

Consultation to Parents with Serious Medical Illness: Parenting at a Challenging Time. 2009. Russell K, Rauch P. In: Handbook of General Hospital Psychiatry, 6th Edition. Eds: Stern T, Cassem N. Mosby. 583-592.

Children Facing the Death of a Parent: The Experiences of a Parent Guidance Program at The Massachusetts General Hospital Cancer Center. 2006. Swick S, Rauch P. Child & Adolescent Psychiatric Clinics of North America. 15(3): 779-794.

Adult Cancer Patients as Parents: What Do Oncologists and Primary Care Providers Know? 2005. Moore C, Muriel A, Pirl W, Beiser M, Rauch P. Psycho-Oncology. 14(Supplement 1): S58.

COMMUNICATION

Communicating with Children When a Parent is Dying. 2017. Moore C, Rauch P. In: Oxford Textbook of Communication in Oncology and Palliative Care. Eds: Kissane D, et al. Oxford University Press.

Suggestions for Patients on How to Talk With Children About a Parent’s Cancer. 2003. Muriel A, Rauch P. Journal of Supportive Oncology. 1(2): 143-145.  

COMMUNITY EDUCATION

The Power of Presence: Finding Hope in an Oncology Support Group Setting. 2014. Berrett-Abebe J, Convery MS. In: Hope Matters: The Power of Social Work. Eds: Clark E, Hoffler E. NASW Press. 59-62. 

When a Parent has Cancer: A Community Based Program for School Personnel. 2007. Fasciano K, Berman H, Moore C, et al. Psycho-Oncology. 16(2): 158–167.

Parents With Cancer: Who’s Looking After the Children? 2003. Rauch P, Muriel A, Cassem N. Journal of Clinical Oncology. 20(21): 4399-4402.

EDITORIALS 

When a Parent has Cancer: Lessons Learned From 20 Years of Parent Guidance. 2016. Rauch P. Journal of the American Academy of Child & Adolescent Psychiatry. 55(10S): S58-S59.

A Population-Based Estimate of Cancer Survivors Residing With Minor Children. 2010. Rauch P, Moore C. Cancer. 116(18): 4218-4220.

You Are Only As Happy As Your Most Unhappy Child. 2007. Rauch P. Psycho-Oncology. 16(2): 99-100.

PARENTING CONCERNS QUESTIONNAIRE (PCQ)

Psychometric Properties of the Parenting Concerns Questionnaire in Cancer Survivors With Minor and Young Adult Children. 2016. Inhestern L, Bultmann J, Beierlein V, Möller B, Romer G, Muriel A, Moore C, et al. Psycho-Oncology. 25(9): 1092-1098.

Parenting Changes in Adults with Cancer. 2015. Moore C, Rauch P, et al. Cancer. 121(19): 3551-3557.

An Assessment of Parenting Concerns in Adults with Cancer. 2014. Moore C, Muriel A, Rauch P. Psycho-Oncology. 23(Supplement 1): 63.

Measuring Psychosocial Distress and Parenting Concerns among Adults with Cancer: The Parenting Concerns Questionnaire. 2012. Muriel A, Moore C, Baer L, Park E, Kornblith A, Pirl W, Prigerson H, Ing J, Rauch P. Cancer. 118(22): 5671-5678.

GENETIC RISK & BRCA +

Psychosocial Adjustment and Perceived Risk Among Adolescent Girls From Families With BRCA1/2 or Breast Cancer History. 2016. Bradbury A, Patrick-Miller L, Schwartz L, Burke Sands C, Egelston B, Henry-Moss D, Domchek S, Daly M, Tuchman L, Moore C, Rauch P, et al. Journal of Clinical Oncology. 34(28): 3409-3416.

Psychosocial Adjustment in School-age Girls With a Family History of Breast Cancer. 2015. Bradbury A, Patrick-Miller L, Schwartz L, Egleston B, Burke Sands C, Chung W, Glendon G, McDonald J, Moore C, Rauch P, et al. Pediatrics. 136(5): 927-937.

Perceptions of Breast Cancer Risk, Psychological Adjustment & Behaviors in Adolescent Girls at High-Risk and Population-Risk for Breast Cancer. 2014. Bradbury A, Patrick-Miller L, Egleston B, Schwartz L, Tuchman L, Moore C, Rauch P, Daly M. Journal of Adolescent Health. 54(2): S87. 

GRIEF & LOSS 

Helping Grieving Children and Adolescents. 2018. Moore C. In: Current Clinical Psychiatry: Clinical Handbook of Bereavement and Grief Reactions. Ed: Bui E. Series Ed: Rosenbaum J. Humana Press. 189-215.

END OF LIFE

Parenting with a Life-Limiting Illness. 2018. Shea S, Moore C. Child and Adolescent Psychiatric Clinics. 27(4): 567-578.

What Do Children Wish for From a Dying Parent? A Qualitative Exploration. 2014. Muriel A, Moore C, Park E, Rauch P. Psycho-Oncology. 23(Supplement 1): 107-108.